“I’m a mother, but I’m also a facilitator in her every-day life”: Parents’ voices about barriers and support for internet participation among young people with intellectual disabilities

Vol.11,No.1(2017)
Special issue: Internet use and disability

Abstract

In general, the Internet is an arena where parents (as well as other adults) have limited insight and possibilities to support the young person. However, several studies indicate that parents are one of the most important facilitators in the every-day life of young persons with intellectual disabilities. Therefore, the aim of the current article is to highlight parents’ perceptions and actions in relation to opportunities and barriers for these young people when using the Internet. The empirical material consists of interviews with 22 parents of intellectually challenged young people in Sweden. The transcribed interviews were analysed using a thematic analysis, which is a method of identifying, analysing and reporting patterns within data sets. The results show that parents’ views are double-edged; on the one hand, they see great possibilities for their children, thanks to the Internet, but on the other hand, they are afraid that due to their disability, their children are more sensitive to different contents and interactions on the Internet. Furthermore, the results indicate that parents believe that the Internet can facilitate participation in social life, but that it precludes young people with intellectual disabilities from being part of society in general when it comes to community functions and services. This article will discuss barriers and support in relation to the individual and her or his support system, which brings into focus the parent’s responsibility and support for young people, helping them to surmount barriers – instead of avoiding or ignoring them – and find ways to take action to do so.


Keywords:
internet; intellectual disabilities; young people; barriers; support
Author biography

Martin Molin

Martin Molin, Associate professor of social work at the Centre for Child and Youth Studies at University West, Sweden. His research and teaching interests relates to the area of: Participation and exclusion in upper secondary special programme for pupils with intellectual disabilities, Identification processes and adulthood, as well as, Transition between school and work-life for young people with intellectual disabilities.

References

Björquist, E. (2016). Mind the gap. Transition to adulthood – youths’ with disabilities and their caregivers’ perspectives [Medicine Doctoral dissertation]. Lund: Lund University.

Borland, J., & Ramcharan, P. (2000). Empowerment in informal settings. In G. Ramcharan, G. Roberts, & G. Grant. (Eds.), Empowerment in everyday life: Learning disability (2nd ed.) (pp. 88–100). London: J. Kengsley.

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. https://doi.org/10.1191/1478088706qp063oa

Bunning, K., Heath, B., & Minnion, A. (2009). Communication and empowerment: A place for rich and multiple media? Journal of Applied Research in Intellectual Disabilities, 22, 370-379. https://doi.org/10.1111/j.1468-3148.2008.00472.x

Caton, S. & Chapman, M. (2016). The use of social media and people with intellectual disability: A systematic review and thematic analysis. Journal of Intellectual and Developmental Disability, 41, 125-139. https://doi.org/10.3109/13668250.2016.1153052

Chadwick, D., Wesson, C., & Fullwood, C. (2013). Internet access by people with intellectual disabilities: Inequalities and opportunities. Future Internet, 5, 376-397. https://doi.org/10.3390/fi5030376

Cumming, T. M., Strnadová, I., Knox, M., & Parmenter, T. (2014). Mobile technology in inclusive research: Tools of empowerment. Disability & Society, 29, 999-1012. https://doi.org/10.1080/09687599.2014.886556

Darcy, S., Maxwell, H, & Green, J. (2016). Disability citizenship and independence through mobile technology? A study exploring adoption and use of a mobile technology platform. Disability & Society, 31, 497-519. https://doi.org/10.1080/09687599.2016.1179172

Kennedy, H., Evans, S., & Thomas, S. (2011). Can the Web be made accessible for people with intellectual disabilities? The Information Society, 27, 29–39. https://doi.org/10.1080/01972243.2011.534365

Kuczynski, L., & De Mol, J. (2015). Dialectical models of socialization. In W. F. Overton & P. C. M. Molenaar (Eds.), Theory and method. Volume 1 of the handbook of child psychology and developmental science (7th ed.) (pp. 323-368). Hoboken, NJ: Wiley.

Lussier-Desrochers, D., Caouette, M., & Godin-Tremblay, V. (2016). Démarche exploratoire sur les tablettes numériques en soutien à la suppléance à la communication orale pour les personnes présentant une déficience intellectuelle (DI) ou un trouble du spectre de l’autisme (TSA) (Research Report). [An exploratory approach to digital tablets in support of oral communication substitution for persons with intellectual disabilities (IDDs) or autism spectrum disorders (ASDs) (Research Report).] Trois-Rivières, Québec: Centre de partage d’expertise en intervention technoclinique.

Löfgren-Mårtenson L (2005) Kärlek.nu. Om Internet och unga med utvecklingsstörning. [Love. Now. About Internet and Young People with Intellectual Disabilities]. Lund: Studentlitteratur.

Löfgren-Mårtenson, L. (2008). Love in cyberspace. Swedish young people with intellectual disabilities and the Internet. Scandinavian Journal of Disability Research, 10, 125–138. https://doi.org/10.1080/15017410701758005

Löfgren-Mårtenson, L., Sorbring, E., & Molin, M. (2015). "T@ngled up in Blue": Views of parents and professionals on internet use for sexual purposes among young people with intellectual disabilities. Sexuality and Disability, 33, 533-544. https://doi.org/10.1007/s11195-015-9415-7

MAXQDA (2015). Getting started guide. Retrieved from http://www.maxqda.com/

McVilly, K., Stancliffe, R. J., Parmenter, T. R., & Burton-Smith, R (2006). ‘I get by with a little help from my friends’: Adults with ID discuss loneliness. Journal of Applied Research in Intellectual Disabilities, 19, 191–203. https://doi.org/10.1111/j.1468-3148.2005.00261.x

Molin, M., Sorbring, E., & Löfgren-Mårtenson, L. (2015). Parents and teachers views on internet and social media usage by pupils with intellectual disabilities. Journal of Intellectual Disabilities, 19, 22–33. https://doi.org/10.1177/1744629514563558

Normand, C. (2016, June). A conceptual model of factors leading to the inclusion of people with neurodevelopmental disorders in the digital world. Paper presented at 5th Annual Conference of ALTER-ESDR: Inclusion, Participation and Human Rights in Disability Research - comparisons and exchanges. Stockholm, Sweden.

Nussbaum, M. (2009). The capabilities of people with cognitive disabilities. Metaphilosophy. 40, pp. 331-351. https://doi.org/10.1111/j.1467-9973.2009.01606.x

Nussbaum, M. (2013). Främja förmågor. En modell för mänsklig utveckling. [Promote abilities. A model for human development] Stockholm: Karneval förlag.

Palmer, S. B., Wehmeyer, M. L., Davies, D. K., & Stock, S. E. (2012). Family members’ reports of the technology use of family members with intellectual and dev. disabilities. Journal of Intellectual Disability Research, 56, 402-414. https://doi.org/10.1111/j.1365-2788.2011.01489.x

Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., … Yeager, M. H. (2010). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, DC: American Association on Intellectual and Developmental Disabilities.

Schalock, R. (2011). The evolving understanding of the construct of intellectual disability. Journal of Intellectual & Developmental Disability, 36, 227–237. https://doi.org/10.3109/13668250.2011.624087

Seale, J. (2014). The role of supporters in facilitating the use of technologies by adolescents and adults with learning disabilities: a place for positive risk-taking? European Journal of Special Needs Education, 29, 220-236, https://doi.org/10.1080/08856257.2014.906980

Sharabi, A., & Margalit, M. (2011). Virtual friendships and social distress among adolescents with and without learning disabilities: The subtyping approach. European Journal of Special Needs Education, 26, 379-394. https://doi.org/10.1080/08856257.2011.595173

Sorbring, E. (2012). Parents’ concern about their teenage children's Internet use. Journal for Family Issues, 53, 75 – 96. https://doi.org/10.1177/0192513x12467754

Sorbring, E., Hallberg, J., Bohlin, M., & Skoog, T. (2014). Parental attitudes and young people's online sexual activities. Sex Education: Sexuality, Society and Learning, 15, 129-143. https://doi.org/10.1080/14681811.2014.981332

Stendal, K., Balandin, S., & Molka-Danielsen, J. (2011). Virtual worlds: A new opportunity for people with lifelong disability? Journal of Intellectual and Developmental Disabilities, 36, 80–83. https://doi.org/10.3109/13668250.2011.526597

United Nations (2006). Convention on the Rights of Persons with Disabilities. Retrieved from https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html

Watling, S. (2011). Digital exclusion: Coming out from behind closed doors. Disability & Society, 26, 491-495. https://doi.org/10.1080/09687599.2011.567802

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