From solitude to solicitation: How people with intellectual disability or autism spectrum disorder use the internet

Vol.11,No.1(2017)
Special issue: Internet use and disability

Abstract

Very little is known about how people with intellectual disability (ID) or autism spectrum disorder (ASD) use the Internet. However, we do know that many of them have limited social circles. Electronic social media could facilitate the development of relationships, increase social participation and reduce social isolation for these people. However it may also expose users to unwanted encounters. Our exploratory study attempts to get a glimpse of Internet experiences of young adults with ID or ASD. Eight participants (five with ID and three with ASD) whose mean age was 25 years participated in this preliminary study. A sociodemographic and Internet use questionnaire was administered with the help of the participants’ support worker. Seven participants agreed to be interviewed by one of the researchers in a separate meeting, in the presence of their support worker. Results show that all participants enjoyed using the Internet for communicating (e.g. Facebook, e‑mail, chatrooms, dating sites) or entertainment (e.g. watching videos, listening to music). Three male subjects played games online, and only participants with ASD (without ID) created content (e.g. website or blog). All interviewees with ID and two of the three with ASD had distressing experiences including: being insulted online, having false rumors spread, receiving threats or being targets of sexual cyber-solicitation. Users with ID have had to rely on friends, parents or social workers to avoid or rectify cyber-victimization episodes. Internet access has opened a wide window of opportunity for people with ID and ASD, but more education and support is needed to ensure safe and positive Internet use by this population.


Keywords:
Internet; social networking; sexual solicitation; intellectual disability; autism
References

Abramova, O., Baumann, H., Krasnova, H., & Buxmann, P. (2016). Gender differences in online dating: what do we know so far? A systematic literature review. 49th Hawaii International Conference on System Sciences. https://doi.org/10.1109/HICSS.2016.481

Amichai-Hamburger, Y. (Ed.). (2013). The social net: Human behavior in cyberspace (2nd ed.). New York, NY: Oxford University Press.

Baumgartner, S. E., Valkenburg, P. M., & Peter, J. (2010). Unwanted online sexual solicitation and risky sexual online behavior across the lifespan. Journal of Applied Developmental Psychology, 31, 439-447. https://doi.org/10.1016/j.appdev.2010.07.005

Blackhart, G. C., Fitzpatrick, J., & Williamson, J. (2014). Dispositional factors predicting use of online dating sites and behaviors related to online dating. Computers in Human Behavior, 33, 113-118. https://doi.org/10.1016/j.chb.2014.01.022

Blais, M., & Martineau, S. (2006). L’analyse inductive générale: Description d’une démarche visant à donner un sens à des données brutes. [General inductive analysis: Description of a process aimed at making sense of raw data]. Recherches qualitatives [Qualitative Research], 26(2), 1-18.

Blaya, C. (2015). Les jeunes et les prises de risque sur Internet. [Youth and risk taking on the Internet.] Neuropsychiatrie de l'enfance et de l'adolescence [Childhood and Adolescence Neuropsychiatry], 63, 518-523. https://doi.org/10.1016/j.neurenf.2015.07.003

Brereton A. V., Tonge B. J., & Stewart L. E. (2006). Psychopathology in children and adolescents with autism compared to young people with intellectual disability. Journal of Autism & Developmental Disorders, 36, 863–870. https://doi.org/10.1007/s10803-006-0125-y

Buijs, P. C. M., Boot, E., Shugar, A., Fung, W. L. A., & Bassett, A. S. (2016). Internet safety issues for adolescents and adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 30, 416-418. https://doi.org/10.1111/jar.12250

Cambridge P., Carpenter J., Beecham J., Hallam A., Knapp M., & Forrester-Jones R. (2002). Twelve years on: The long term outcomes and costs of deinstitutionalisation and community care for people with learning disabilities. Tizard Learning Disability Review, 7, 34–42. https://doi.org/10.1108/13595474200200027

Caton, S. & Chapman, M. (2016). The use of social media and people with intellectual disability: A systematic review and thematic analysis. Journal of Intellectual and Developmental Disability, 41, 125-139. https://doi.org/10.3109/13668250.2016.1153052

Chadwick, D., Wesson, C., & Fullwood, C. (2013). Internet access by people with intellectual disabilities: Inequalities and opportunities. Future Internet, 5, 376-397. https://doi.org/10.3390/fi5030376

Clement, T., & Bigby, C. (2009). Breaking out of a distinct social space: Reflections on supporting community participation for people with severe and profound intellectual disability. Journal of Applied Research in Intellectual Disabilities, 22, 264-275. https://doi.org/10.1111/j.1468-3148.2008.00458.x

Couch, D., Liamputtong, P., & Pitts, M. (2012). What are the real and perceived risks and dangers of online dating? Perspectives from online daters. Health, Risk & Society, 14, 697-714. https://doi.org/10.1080/13698575.2012.720964

Didden, R., Scholte, R. H. J., Korzilius, H., De Moor, J. M. H., Vermeulen, A., O'Reilly, M., . . . Lancioni, G. E. (2009). Cyberbullying among students with intellectual and developmental disability in special education settings. Developmental Neurorehabilitation, 12, 146-151. https://doi.org/10.1080/17518420902971356

Dowdell, E. B. (2013). Use of the Internet by parents of middle school students: Internet rules, risky behaviours and online concerns. Journal of Psychiatric and Mental Health Nursing, 20(1), 9-16. https://doi.org/10.1111/j.1365-2850.2011.01815.x

Forrester-Jones R., Carpenter J., Coolen-Schrijner P., Cambridge P., Tate A., & Beecham J. (2006) The social networks of people with intellectual disability living in the community 12 years after resettlement from long-stay hospitals. Journal of Applied Research in Intellectual Disabilities 19, 285–295. https://doi.org/10.1111/j.1468-3148.2006.00263.x

Fox, S. (2011). Americans living with disability and their technology profile. Pew Research Center. Retrieved from http://www.pewinternet.org/2011/01/21/americans-living-with-disability-and-their-technology-profile/

García-Galera, M.-C., Del-Hoyo-Hurtado, M., & Fernández-Muñoz, C. (2014). Engaged youth in the Internet. The role of social networks in social active participation. Comunicar, 22(43), 35-43. https://doi.org/10.3916/C43-2014-03

Giard, M-F., & Morin, D. (2010). Le consentement à la recherche en déficience intellectuelle: Situation québécoise [Consent to research in intellectual disability: The situation in Quebec]. Revue Francophone de la Déficience Intellectuelle [Francophone Journal of Intellectual Disability], 21, 40-53.

Gohier, C. (2004). De la démarcation entre critères d’ordre scientifique et d’ordre éthique en recherche interprétative. [Setting boundaries between scientific and ethical criteria in interpretive research]. Recherches Qualitatives [Qualitative Research], 24, 3-17

Guan, S.-S. A., & Subrahmanyam, K. (2009). Youth Internet use: Risks and opportunities. Current Opinion in Psychiatry, 22, 351-356. https://doi.org/10.1097/YCO.0b013e32832bd7e0

Harrysson, B., Svensk, A., & Johansson, G.I. (2004). How people with developmental disabilities navigate the Internet. British Journal of Special Education, 31, 138-142. https://doi.org/10.1111/j.0952-3383.2004.00344.x

Helweg-Larsen, K., Schütt, N., & Larsen, H. B. (2012). Predictors and protective factors for adolescent Internet victimization: Results from a 2008 nationwide Danish youth survey. Acta Paediatrica, 101, 533-539. https://doi.org/10.1111/j.1651-2227.2011.02587.x

Ho, R. C., Zhang, M. W. B., Tsang, T. Y., Toh, A. H., Fang, P., Yanxia, L., . . . Kwok-Kei, M. (2014). The association between internet addiction and psychiatric co-morbidity: A meta-analysis. Bio Med Central [BMC] Psychiatry, 14, 284-306. https://doi.org/10.1186/1471-244X-14-183

Holmes, K. M., & O'Loughlin, N. (2012). The experiences of people with learning disabilities on social networking sites. British Journal of Learning Disabilities, 42, 3-7. https://doi.org/10.1111/bld.12001

Hoppestad, B. S. (2013). Current perspective regarding adults with intellectual and developmental disabilities accessing computer technology. Disability & Rehabilitation: Assistive Technology, 8, 190-194. https://doi.org/10.3109/17483107.2012.723239

Institut de la statistique du Québec [ISQ] (2013). L’Enquête québécoise sur l’accès des ménages à Internet 2012. Présentation et analyse des résultats. [2012 Québec Household Internet Access Survey. Results presentation and analysis.] Québec, QC: Gouvernement du Québec.

Internet World Stats (2016). World internet usage and population statistics June 30, 2016 - update. Retrieved from http://www.internetworldstats.com/stats.htm

Kampert, A. L., & Goreczny, A. J. (2007). Community involvement and socialization among individuals with mental retardation. Research in Developmental Disabilities, 28, 278-286. https://doi.org/10.1016/j.ridd.2005.09.004

Khemka I., & Hickson L. (2000). Decision-making by adults with mental retardation in simulated situations of abuse. Mental Retardation, 38, 15–26. https://doi.org/10.1352/0047-6765(2000)038<0015:DBAWMR>2.0.CO;2

Kydland, F., Molka-Danielson, J., & Balandin, S. (2012, November). Examining the use of social media tool “Flickr” for impact on loneliness for people with intellectual disability. Paper presented at Norsk konferanse for organisasjoners bruk av informasjonsteknologi, Bodo, Norway. Retrieved from http://dro.deakin.edu.au/eserv/DU:30062177/balandin-examininguseof-2012.pdf

Lenhart, A. (2013). Young adults, mobile phones and social media: Technology and the transition to adulthood. Pew Research Center. Retrieved from http://www.pewinternet.org/2013/05/07/young-adults-mobile-phones-and-social-media-technology-and-the-transition-to-adulthood/

Livingstone, S., Haddon, L., Görzig, A., & Ólafsson, K. (2011). Risks and safety on the internet: The perspective of European children. Full Findings. London, UK: EU Kids Online.

Löfgren-Mårtenson, L. (2008). Love in cyberspace: Swedish young people with intellectual disabilities and the Internet. Scandinavian Journal of Disability Research, 10, 125-138. https://doi.org/10.1080/15017410701758005

Löfgren-Mårtenson, L., Sorbring, E., & Molin, M. (2015). "T@ngled up in blue": Views of parents and professionals on Internet use for sexual purposes among young people with intellectual disabilities. Sexuality & Disability, 33, 533-544. https://doi.org/10.1007/s11195-015-9415-7

Lussier-Desrochers, D., Dupont, M.-E., Lachapelle, Y., & Leblanc, T. (2011). Étude exploratoire sur l'utilisation de l'Internet par les personnes présentant une déficience intellectuelle. [Exploratory study on Internet use by people with an intellectual disability.] Revue francophone de la déficience intellectuelle [Francophone Journal of Intellectual Disability], 22, 41-50.

MacMullin, J. A., Lunsky, Y., & Weiss, J. A. (2016). Plugged in: Electronics use in youth and young adults with autism spectrum disorder. Autism: The International Journal of Research and Practice, 20, 45-54. https://doi.org/10.1177/1362361314566047

Maïano, C., Aimé, A., Salvas, M.-C., Morin, A. J. S., & Normand, C. L., (2015). Prevalence and correlates of bullying perpetration and victimization among school-aged youth with intellectual disabilities: A systematic review. Research in Developmental Disabilities, 49-50, 181-195. https://doi.org/10.1016/j.ridd.2015.11.015

Maïano, C., Normand, C.L., Salvas, M.-C., Moullec, G., & Aimé, A. (2015). Prevalence of school bullying among youth with autism spectrum disorders: A systematic review and meta-analysis. Autism Research, 9, 601-615. https://doi.org/10.1002/aur.1568

Mandell, D. S., Walrath, C. M., Manteuffel, B., Sgro, G., & Pinto-Martin, J. A. (2005). The prevalence and correlates of abuse among children with autism served in comprehensive community-based mental health settings. Child Abuse & Neglect, 29, 1359–1372. https://doi.org/10.1016/j.chiabu.2005.06.006

McClimens, A., & Gordon, F. (2009). People with intellectual disabilities as bloggers: What's social capital got to do with it anyway? Journal of Intellectual Disabilities, 13, 19-30. https://doi.org/10.1177/1744629509104486

McGillivray, A. J., & McCabe, P. M. (2005). Early detection of depression and associated risk factors in adults with mild/moderate intellectual disability. Research in Developmental Disabilities, 28, 59–70. https://doi.org/10.1016/j.ridd.2005.11.001

Moisey, S., & van de Keere, R. (2007). Inclusion and the Internet: Teaching adults with developmental disabilities to use information and communication technology. Developmental Disabilities Bulletin, 35, 72-102.

Molin, M., Sorbring, E., & Löfgren-Mårtenson, L. (2015). Teachers' and parents' views on the Internet and social media usage by pupils with intellectual disabilities. Journal of Intellectual Disabilities, 19, 22-33. https://doi.org/10.1177/1744629514563558

Murphy, G. H., & O’Callaghan, A. C. (2004). Capacity of adults with intellectual disabilities to consent to sexual relationships. Psychological Medicine, 34, 1347–1357. https://doi.org/10.1017/S0033291704001941

Netimperative (2012, February 8). Online dating: New eye-tracking research shows what men and women really want. Netimperative. Retrieved from http://www.netimperative.com/2012/02/online-dating-new-eye-tracking-research-shows-what-men-and-women-really-want/

Nettlebeck, T., & Wilson, C. (2002). Personal vulnerability to victimization of people with mental retardation. Trauma,Violence & Abuse, 3, 289–306.

Noll, J. G., Shenk, C. E., Barnes, J. E., & Haralson, K. J. (2013). Association of maltreatment with high-risk internet behaviors and offline encounters. Pediatrics, 131, 510-517. https://doi.org/10.1542/peds.2012-1281

Noll, J. G., Shenk, C. E., Barnes, J. E., & Putnam, F. W. (2009). Childhood abuse, avatar choices, and other risk factors associated with Internet-initiated victimization of adolescent girls. Pediatrics, 123, 1078-1083. https://doi.org/10.1542/peds.2008-2983

Normand, C. L., Lussier-Desrochers, D., Fecteau, S. M., Godin-Tremblay, V., Dupont, M.-È., Roux, J., & Romero-Torres, A. (2016). Factors leading to the digital exclusion of people with neurodevelopmental disorders: A conceptual model. Annual Review of Cybertherapy and Telemedicine, 14, 23-29.

Normand, C. L., & Sallafranque St-Louis, F. (2015). Cybervictimization of young people with an intellectual or developmental disability: Risks specific to sexual solicitation. Journal of Applied Research in Intellectual Disabilities, 29, 99-110. https://doi.org/10.1111/jar.12163

O’Callaghan, A. C., & Murphy, G. H. (2007), Sexual relationships in adults with intellectual disabilities: Understanding the law. Journal of Intellectual Disability Research, 51, 197–206. https://doi.org/10.1111/j.1365-2788.2006.00857.x

Paillé, P., & Mucchielli, A. (2012). L'analyse qualitative en sciences humaines et sociales. [Qualitative analysis in humanities and social sciences] (2nd ed.). Paris: Armand Colin.

Raghavendra, P., Newman, L., Grace, E., & Wood, D. (2013). "I could never do that before": Effectiveness of a tailored Internet support intervention to increase the social participation of youth with disabilities. Child: Care, Health & Development, 39, 552-561. https://doi.org/10.1111/cch.12048

Rainie, L. (2016). Digital divides 2016. Pew Research Center. Retrieved from http://www.pewinternet.org/2016/07/14/digital-divides-2016/

Rainie, L. (2013). The state of Facebook. Pew Research Center. Retrieved from http://www.pewinternet.org/2013/03/14/the-state-of-facebook/

Roy, N. (2016). Portrait des Québécoises en 8 temps. [Portrait of Québec women in eight counts.] Québec, QC: Conseil du Statut de la Femme.

Sallafranque St-Louis, F. & Normand, C. L. (2011). La sollicitation sexuelle sur Internet auprès des jeunes ayant un retard de développement. [Sexual solicitation on the Internet of youth with development delays.] Revue québécoise de psychologie [Québec Journal of Psychology], 32(1), 1-14.

Seale, J. (2014). The role of supporters in facilitating the use of technologies by adolescents and adults with learning disabilities: A place for positive risk-taking? European Journal of Special Needs Education, 29, 220-236. https://doi.org/10.1080/08856257.2014.906980

Shpigelman, C.-N., & Gill, C. J. (2014). How do adults with intellectual disabilities use Facebook? Disability & Society, 29, 1601-1616. https://doi.org/10.1080/09687599.2014.966186

Smith, A. (2014). 6 new facts about Facebook. Pew Research Center. Retrieved from http://www.pewresearch.org/fact-tank/2014/02/03/6-new-facts-about-facebook/

Smith, A., & Anderson, M. (2016). 5 facts about online dating. Pew Research Center. Retrieved from http://www.pewresearch.org/fact-tank/2016/02/29/5-facts-about-online-dating/

Smith, A., & Duggan, M. (2013). Part 2: Dating apps and online dating sites. Pew Research Center. Retrieved from http://www.pewinternet.org/2013/10/21/part-2-dating-apps-and-online-dating-sites/

Stake, R. E. (2006). Multiple case study analysis. New-York, NY: The Guildford Press.

Subrahmanyam, K., Greenfield, P. M., & Brendesha, T. (2004). Constructing sexuality and identity in an online teen chat room. Applied Developmental Psychology, 25, 651- 666. https://doi.org/10.1016/j.appdev.2004.09.007

Suzuki, K., Asaga, R., Sourander, A., Hoven, C. W., & Mandell, D. (2012). Cyberbullying and adolescent mental health. International Journal of Adolescent Medicine and Health, 24, 27-35. https://doi.org/10.1515/ijamh.2012.005

Tanis, E. S., Palmer, S., Wehmeyer, M., Davies, D. K., Stock, S. E., Lobb, K., & Bishop, B. (2012). Self-report computer-based survey of technology use by people with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 50, 53-68. https://doi.org/10.1352/1934-9556-50.1.53

Tilley, C. M., Bruce, C. S., Hallam, G., & Hills, A. P. (2006). A model for the development of virtual communities for people with long-term, severe physical disabilities. Information Research, 11(3), paper 253. Retrieved from http://InformationR.net/ir/11-3/paper253.html

UN Broadband Commission for Digital Development Working Group on Broadband and Gender (2015). Cyber violence against women and girls. UN Women, UNDP and ITU. Retrieved from http://www.unwomen.org/en/digital-library/publications/2015/9/cyber-violence-against-women-and-girls

Wells, M., & Mitchell, K. J. (2014). Patterns of internet use and risk of online victimization for youth with and without disabilities. The Journal of Special Education, 48, 204-213. https://doi.org/10.1177/0022466913479141

Ybarra, M. L. (2004). Linkages between depressive symptomatology and Internet harassment among young regular Internet users. CyberPsychology & Behavior, 7, 247-257. https://doi.org/10.1089/109493104323024500

Ybarra, M. L., Espelage, D. L., & Mitchell, K. J. (2007). The co-occurrence of Internet harassment and unwanted sexual solicitation victimization and perpetration: Associations with psychosocial indicators. Journal of Adolescent Health, 41, 31-41. https://doi.org/10.1016/j.jadohealth.2007.09.010

Ybarra, M. L., Mitchell, K. J., Palmer, N. A., & Reisner, S. L. (2014). Online social support as a buffer against online and offline peer and sexual victimization among U.S. LGBT and non-LGBT youth. Child Abuse & Neglect, 39, 123-136. https://doi.org/10.1016/j.chiabu.2014.08.006

Young, K. S. (2009). Internet addiction: The emergence of a new clinical disorder. CyberPsychology & Behavior, 1, 237-244. https://doi.org/10.1089/cpb.1998.1.237

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